Skip redundant pieces
The sunflower logo of the Kansas Alliance of Direct Support Professionals, KADSP, Strengthening the role of Direct Support Professionals








Home


On-Line Discussion Group

NADSP Guiding Principles

About Us

Our Goals

Contact Us

Meetings

Bills of Interest

Legislative Tips

Example Letters


Links

The Kansas Alliance for Direct Support Professionals


The Kansas Chapter of the National Alliance for Direct Support Professionals



Take Action!


Direct Support Professional Wage Bill (H.R. 5197) Introduced in House:

Urge Your Representative to Co-Sponsor Bipartisan Terry-Capps Bill, October 1, 2004

September 30, 2004: U.S. Representatives Lee Terry (R-NE) and Lois Capps (D-CA) introduced September 28, 2004, the Direct Support Professional Fairness and Security Act of 2004 (H.R. 5197). As part of its National Advocacy Campaign, ANCOR worked directly with Representatives Terry and Capps to produce bipartisan legislation designed to help ANCOR providers and other private employers of supports to people with disabilities to address the crisis in recruitment and retention of direct support professionals by providing increased federal funding to states for this purpose.

For decades, recruitment and retention issues have been viewed as a provider issue only. However, the issue of a stable, quality workforce to provide individualized, long-term supports to people with disabilities and the elderly is beginning to gain local, state, and national attention.

ANCOR is grateful that Representatives Terry and Capps are taking the lead in bringing this issue to the forefront. The Direct support Professional Fairness and Security Act of 2004 is a significant step forward in beginning the serious national discussion and action that this issue warrants.

Terry-Capps Bipartisan Wage Legislation

ANCOR's work with these two Congressional champions culminated last week at ANCOR's 2004 Governmental Activities Seminar when they announced plans to introduce the Direct Support Professional Fairness and Security Act of 2004 within a week. During that event, representatives from The Arc, United Cerebral Palsy, and Lutheran Services in America spoke in support of the efforts of Representatives Terry and Capps and ANCOR in bringing forward legislation to address this national issue.

H.R. 5197 would amend Title XIX of the Social Security Act (Medicaid statute) to provide funds to states to enable them to increase the wages that private providers pay to direct support professionals in supporting certain individuals with disabilities through specific state Medicaid services. The legislation is designed to eliminate the wage gap and assure at least equal wages paid to private employees as those paid to employees working in local, county, or state operated Medicaid programs. H.R. 5197 would provide temporary Medicaid assistance to states that submit a state wage enhancement plan.

While acknowledging the recruitment and retention crisis and low wages of direct support workers across all long-term support options, the Direct Support Professional Fairness and Security Act of 2004 is designed to eliminate wage inequities for those who provide private supports to targeted individuals with disabilities, those individuals, regardless of age, who are eligible for and receiving Medicaid 1915(c) home and community-based waiver services, 1115 waiver services, personal care, rehabilitative services, home health care services, and ICF/MR services.

Highlights of the Direct Support Professional Fairness and Security Act of 2004 include the following:

State Option: First, H.R. 5197 would be an option to states, that is, states chose to participate to achieve pay parity between private and public direct support professionals. Financial Incentive to States: It would provide a financial incentive (additional temporary federal funding) to states to reimburse private providers for increased wages and mandated wage-related costs for specific direct support professionals.

Enhanced FMAP: States would receive enhanced Federal medical assistance percentage for five years to increase wages, no additional state dollars to match the additional federal funds.

Submission of 5-Year Plan and Maintenance of Wage Increase: In order to receive the enhanced FMAP, states would have to submit a five-year plan and must assure continuation of the increased wage rate after the five-year period.

Annual Indexing: The state must provide assurance that at the end of the 5-year implementation period, it will provide funding to increase the wages annually by a percentage equal to the Bureau of Labor Statistic's employment cost index (ECI).

Collaborative Process: The state's plan must be developed with meaningful participation of private providers, individuals with disabilities and family members, and direct support professionals, and organizations that represents these groups.

Funding for State Planning Grants: It would provide $3 million in federal funding for state planning grants to help states develop their wage enhancement state plan.

GAO and Inspector General Requirements: Requires a General Accountability Office study on recruitment and retention and an Inspector General Audit of progress in reducing/eliminating wage gap.

Take Action Now: Contact your member of the House of Representatives immediately and urge that he/she cosponsor the Direct Support Professional Fairness and Security Act of 2004 (H.R. 5197).

LET'S TREAT DIRECT SUPPORT PROFESSIONALS WITH THE FAIRNESS THEY DESERVE!

LET'S ENSURE THAT THE DEDICATED WORKERS HAVE INCOME SECURITY TO RAISE THEIR FAMILIES!
LET'S ENSURE THAT PEOPLE WITH DISABILITIES AND THEIR FAMILIES HAVE SECURITY IN KNOWING THAT A QUALITY, STABLE WORKFORCE IS THERE FOR THEM!


You can contact your Representative by email on ANCOR's Action Center. Feel free to use the sample letter provided on the Action Center, add your own personal agency information, add personal stories, or any other edits.
Or, directly input your own letter on ANCOR's Action Center. In addition, there is additional background information at the end of this ANCOR Alert that you may want to use in your letter.

For more information: If you have a question or wish to report on the response by your Representative on the Direct Support Professional Fairness and Security Act of 2004, provide your name, agency, state and phone number in an email to Suellen Galbraith, ANCOR's Director for Government Relations.

Additional Background on Recruitment and Retention Crisis:

One of the biggest challenges facing the United States in the 21st Century is assuring that individuals who have disabilities have the quality supports they need throughout their lives. There are more than 54 million Americans of all ages with disabilities, 8 million of whom have mental retardation and other developmental disabilities with nearly 14 million requiring long-term supports and services. These supports include assistance to meet the individual's personal care and hygiene, habilitation, transportation, employment, meal preparation, housekeeping and other home management needs.

The workers who provide these intimate supports are known by many job titles, but one thing in common is shared by all of them. They are the hands, voice and face of long-term supports and the human relationship established between the individual and the worker is at the very core of our nation's formal long-term supports system. A majority of these workers are female and often the sole breadwinner of their household. Although working and paying taxes, many women in these jobs remain impoverished and eligible for federal and state public assistance programs.

Medicaid is the nation's primary financing mechanism for health and long-term supports and services and is the primary source of provider reimbursements. For most people with significant disabilities, Medicaid is the only source of coverage available for critical long-term supports and services. Therefore, the Medicaid program is the lifeline for most people with significant disabilities.

Yet, private providers who employ these direct support professionals face turnover rates of between 40 and 100 percent; rely on fixed public funding to pay wages and benefits; and face a recruitment and retention crisis that threatens the entire stability and quality of our support system for people with disabilities.

This crisis is real and it will worsen unless something is done to turn the tide. It's a real story affecting real people in everyone's community, and it is likely to affect all of us. This crisis is a result of several factors, including:

  • Increased demand for long-term supports and services.
  • A traditional labor supply not able to keep pace with demand.
  • Jobs that cannot compete within today's labor market.

Yes, wages matter!

Over the past decade, both the dollar amount and percentage increase in hourly wage rates for these workers are far below that of comparable job categories as well as the national minimum wage. For example, wages for Personal and Home Care Aides, the Department of Labor's occupational category that is the proxy for direct support professionals, increased only $0.82 from 1992-2000 versus $3.16 and $4.11 for public direct support workers and fast food workers respectively.

A 2003 national report found that the overall average wage for direct support professionals employed by private providers of community services for persons with mental retardation and developmental disabilities was $8.68 per hour, while the average reported wage for state workers was $11.76 per hour.

Unlike other sectors of the private market, the formal long-term supports system is almost entirely dependent upon public financing, particularly Medicaid funding that not only underfunds the true costs of services, but also varies considerably. Unlike traditional private employers of goods and services who can pass along labor costs to their customers, private providers of these publicly financed supports cannot pass along the cost of increasing the wages and benefits for their direct support professionals to their customers, people with disabilities. In addition, states have faced their worst economic conditions in decades, reducing their ability to add to Medicaid funding.


If these are issues you care about, attend a meeting of the KADSP, become a charter member, be heard! Contact Kathy Olson for more information phone: 620.421.6550 extension 1771 or write her at: 2601 Gabriel Parsons, Kansas 67357

Questions? Feedback about the web site? eMail the webmaster at kolson@ku.edu
The University of Kansas is an equal opportunity educator and employer. Updated 4/3/07